These social media toolkits from the National Organization for Rare Disorders, available in English and Spanish, provides sample posts and graphics to share the first-ever national survey of underrepresented rare disease patients and caregivers. This survey hopes to better understand their unique perspectives and experiences in accessing and affording health care.
Rare Disease Diversity Survey Social Media Toolkit English and Spanish
Latest Resources
November 29, 2023
This training from the GW Cancer Center addresses the impact of cancer treatment on the sexual health of cancer survivors.
November 28, 2023
This website presents the Cancer Stage Shifting Initiative, which is aligned with the Cancer Moonshot, focusing on early detection.
November 28, 2023
This communications toolkit is designed to assist hospital systems and state and local health departments in implementing age 9 HPV vaccination messaging.