These social media toolkits from the National Organization for Rare Disorders, available in English and Spanish, provides sample posts and graphics to share the first-ever national survey of underrepresented rare disease patients and caregivers. This survey hopes to better understand their unique perspectives and experiences in accessing and affording health care.
Rare Disease Diversity Survey Social Media Toolkit English and Spanish
Latest Resources
May 15, 2023
At the time of this initiative, New Hampshire ranked high on the list of states for rates of new melanoma diagnoses. Research shows that early exposure to carcinogenic ultraviolet rays, emitted by indoor tanning devices which are easily accessible to teens, can increase the risk of developing skin…
May 15, 2023
From 2011 to 2015, the cancer incidence rates and cancer mortality rates in New Hampshire and Vermont exceeded the national average. In addition, cancer death rates in rural areas are higher than in urban areas, with barriers such as a lack of broadband internet connectivity and a lower…
May 13, 2023
Data showed that uptake of the human papillomavirus (HPV) vaccine in the catchment area of the Dartmouth-Hitchcock Norris Cotton Cancer Center was lower than the uptake of other vaccines given at ages 11 and 12. A research team conducted an environmental scan focused on understanding the barriers…